The mother of a seven-year-old boy said โI feel like a millionaire, like Iโve won the lotteryโ, after a pioneering clinical trial transformed the life of her son, who has a severe form of epilepsy.
Albie Kelly and Freddie Truelove, both seven, are two of the children who have been given a new lease on life following the research trial at Sheffield Childrenโs Hospital in the UK.
Youngsters taking part in the trial have seen dramatic changes โ moving from experiencing debilitating seizures to learning to speak, read, write independently, make new friends and take part in sport, the hospital said.
Albieโs mother, Lauren Kelly, said: โWe rarely left the house out of fear that Albie might have a seizure in a place not easily accessible for an ambulance. I wouldnโt travel out of the area to stay near Sheffield Childrenโs. Since the research trial itโs like I have a new child.โ
Albie, who lives with his mother, father and sister in Barnsley, South Yorkshire, received the first dose of the trial drug zorevunersen, previously known as STK-001, in June 2022.